It struck me the other day that I now have a small and growing elder care section in my personal library. One or two of these books might be of interest mostly to people who may soon, are now, or have recently been involved in elder care but most are just good reads.
Up first are the two that are most targeted to "users" - those who are caregivers and family members of elders. Caring for Your Parents: The Complete Family Guide by Hugh Delehanty and Elinor Ginzler is published by the AARP. This is especially useful if you are just starting down the pathway of elder care, and/or if you and your siblings have never had any discussions with your parents and/or each other about how the parents will be cared for as they age and become more needy. Blessed is She: Elder Care - Women's Stories of Choice, Challenge, and Community by Nanette J. Davis combines statistics and analysis with excerpts from first-person narratives culled from interviews with 61 caregivers of varied ages and backgrounds. Those mired in caregiving will recognize themselves in many places, and may find much to comfort them here.
Knocking on Heaven's Door: The Path to a Better Way of Death by Katy Butler is both personal narrative and investigative reporting. She uses the story of her father and the pacemaker that kept him alive long past the time he wanted, and the quest to have it turned off, to explore the issues around aging, quality of life, and quality of death. I would recommend this to anyone.
In This Is the Story of a Happy Marriage by Ann Patchett you will find several essays about her grandmother and her dog. They are beautifully written; they will give you new perspectives on love, devotion, and loss; and I dare say they will comfort.
The Death Class: A True Story About Life by Erika Hayasaki is not about elder care per se, but it is about students, and their extraordinary teacher, learning how to live in the face of death. This one is a page-turner.
No More Words: A Journal of My Mother, Anne Morrow Lindbergh by Reeve Lindbergh is just what the title says. You could finish this book in a day or two with uninterrupted reading. But it is not lightweight. There is much to think about here. Anne Morrow Lindbergh was left debilitated and nearly wordless by a series of strokes, and her daughter Reeve writes about caring for her in the last year and a half of her life. It turns out that even the very well-to-do, with all the assistance one could want, suffer the guilt, anger, resentment, and despair elder care brings.
It seemed like everywhere I turned in these books, and often in life, people recommended or spoke of Buddhist philosophy and belief as helpful in negotiating life as a caregiver. One book I have not yet finished, but which came highly recommend to me, is Living Beautifully With Uncertainty and Change by Pema Chodron. Elder care is nothing if not packed to the rafters with uncertainty and change, so maybe this is as good a guide as anything the AARP can tell you about navigating the Medicare maze.
Two novels I'll add to the list and be done: Emily, Alone by Stewart O'Nan, which gives you the perspective of the elder facing life alone at home, companions and acquaintances passing away, children living far off. Wish You Were Here is sort of the prequel to this book and is just as wonderful. These are two of the best novels I've read recently.
If you've read something along the lines of the category of this post, feel free to drop a note about it in the comments. I'd love to hear about it!